This was The Big Day. And it all went perfectly.
Until it didn't.
I had made an appointment for her to have her stitches
removed, as
ordered by the doctor in the ER, with one of the nurses here in Davis.
I made the appointment for 11:30, knowing how late she sleeps these days.
Allowing plenty of time, got to Atria at 10:00 and let
myself into her apartment and yes, she was sleeping. I woke her up and
she was very groggy, but she got dressed and I went out to get her some
coffee, which helped wake her up a bit more. I could tell from how she
was looking around the room that she didn't have a clue where she was.
This was one of her off days, and being awakened early
didn't help that. I think one of the most frustrating things for
me...and definitely for her...is that she wakes up not knowing where
she is and what she should be doing, but knowing that she should be doing
something.
Some days this isn't a big deal, other days it borders on
anxiety about not being able to remember what she is supposed to do. I
have tried giving her something simple to do, but she doesn't want to
do anything I suggest and just stares at me what that little kid standing
defiantly in front of Mommy and refusing to do whatever it is that she is
asked to do.
I brought her the piece that her sister Barb had written
when she first realized she was losing her memory. I wasn't sure my
mother could follow it, but thought she would try, because it was something
from one of her sisters to whom she was the closest. She held it and
looked off and said "You know...I can't remember Barb. I don't
remember who she is." I told her that she was her sister and she asked
if she died or not.
Today she was just very vague and following me around when
we left the building. I told her many times on the ride to Kaiser
where we were going and why we were going there. Sometimes she
remembers something vague about an accident, but most times it's a new piece
of information every time.
I was proud of myself that I actually got to Kaiser five
minutes early. Given that I had to wake her up, that I had to allow
time for her to have coffee, that I had to convince her to put on her shoes,
and that she didn't know where we were going or why, I was thrilled
to discover we were on time.
We
went into the procedure room and a nurse asked her name. She could
remember her first name, but not her last. The nurse checked the
bridge of her nose (I had to remind my mother why she was doing this--that
she'd had a fall). She said there was something covering the stitches,
something that seemed almost metallic. She thought maybe makeup, but I don't
think my mother has any makeup, and if she does, she hasn't used it in a
very long time. Neither of us could figure out what it was. Whatever it
was it seemed to be caked on her nose and she put a wet gauze on it to see
if she could soften the...whatever it was...up enough that she could clean
the wound.
The nurse went off to find her doctor to check the stitches
and I swear, this woman has been my doctor too for many years and I've
always considered her more of a statistician than a physician, since she
seems more concerned with numbers (blood pressure, blood sugar, etc.) than
actual health. She doesn't really "know" me at all. She walked in, said
hello, didn't examine my mother's stitches at all. didn't seem to know why
she was there, and walked out again, Soon, the nurse was back with her
and this time she did, under the nurse's request, check the stitches and
decided that they weren't ready to come out yet, and that we should return
on Friday. So we have to do the whole thing over again.
As we walked out, I held her arm because she said that she
felt her legs might buckle under her at any minute.
I knew she had not had anything to eat yet, so I took her to
IHOP, which is next door to Kaiser, for breakfast. and was pleased that she
actually ate at least half of her pancakes, which was more than I could eat.
She does not "wait" well. I've noticed that whenever we
aren't actively doing something, but are merely waiting--like for a
waiter to take our order, or for the food to come or, in a restaurant, for
the bill to arrive, she always wants to know what we are doing and what we
should be doing.
We left and drove back to Atria. When we got out of
the car she stood in the middle of the parking lot while I locked the car,
as if she didn't have a clue where to go. She asked where we were
going and I said we were going inside the building "This is where you live,"
I said. "I do?" she asked.
When we got inside she said she thought it looked familiar.
We went to her apartment and I gathered up her laundry to bring home to
wash. Some of it was in the hamper, some of it was in the waste
basket. When i had it all collected I went to tell her goodbye.
She was sitting on the couch looking lost. She said "so I'm supposed
to sit here and someone will tell me what to do, right?" I told her
what she was supposed to do was to lie down and take a nap, but that brought
the defiant "I don't have to do that if I don't want to" face and I kissed
her goodbye. As I left, she was sitting there, looking around the room
and, I'm fairly certain, trying to figure out where she was and I know she
was trying to figure out what she was supposed to be doing.
I felt so very helpless.
I came home and did a marathon reading session. I was
so into the first Mickey Bolitar book that we finished in the car that I
immediately ordered the second one and zipped through it. It ended at
a place I couldn't just leave so I ordered the third one, very
frustrated when it seemed to be taking forever to get to my Kindle.
When I went to Amazon and checked the order found I had inadvertently
ordered the paperback. I was able to cancel that order and order the
Kindle version, which was delivered instantly so I am now into that book,
the third in the series. Thank goodness the series ends with book 3.
I didn't get much accomplished but did finish the book and
got my old desk completely cleared of junk. Now all that is left on
the top of that desk is things I have to find room for in the new office.
Today I have the day "off" since it is Logos day.